Latest news

1 year 11 months ago
As treatments for hepatitis C become universally accessible and people previously aware of their status have now largely been treated, the greatest barrier to eliminating hepatitis C is finding the undiagnosed, especially in vulnerable or harder-to-reach populations. To increase outreach and provide more opportunities for testing and treatment in the community, we've been expanding our peer work, and now have peer support leads with growing volunteer teams in Birmingham, South Yorkshire, Merseyside & Cheshire, West Yorkshire, the North East, and across London.
1 year 12 months ago
Public Health England has published its annual 'Hepatitis C in the UK' report for 2018 - the key national reporting document setting out progress towards eliminating hepatitis C. Encouragingly, the report indicates an 11% fall in deaths from hepatitis C in 2017, building on a 3% fall in deaths in 2016. The proportion of at-risk groups being tested is increasing, with surveys estimating that two thirds of people who inject drugs are now aware of their HCV-positive status. More people are accessing treatment than ever before, with an increase of 19% on the previous year.
2 years 1 week ago
The Infected Blood Inquiry has announced that it will hold preliminary hearings in Church House, London, from Monday 24 to Wednesday 26 September.  These hearings will be an opportunity for core participants or their legal representatives to make opening statements about the issues in the Terms of Reference which they would like the Inquiry to prioritise. The hearings will open with a commemoration for the people infected and affected by the infected blood scandal on the morning of the 24th.  
2 years 2 weeks ago
Hepatitis C is a rarity among public health issues – one we can eliminate in a short amount of time. Political leaders from across the political spectrum have spoken out on World Hepatitis Day to express their support for elimination. Ambitious action and firm political commitment to tackling hepatitis C is a no-brainer; it will save countless lives and is highly cost-effective.  On behalf of the UK Government, public health minister Steve Brine said: 
2 years 2 weeks ago
New data released by The Hepatitis C Trust to mark World Hepatitis Day shows a widespread lack of awareness of the transmission risks and symptoms of the potentially deadly virus hepatitis C. Despite 80% of respondents stating they thought they knew what hepatitis C is, less than 40% knew that it infects the liver, and less than 30% knew the virus is curable.
2 years 2 weeks ago
Many of us will know from personal experience that the route to hepatitis C diagnosis can be long. A variety of factors create barriers to getting tested and seeking treatment. Confusion about routes of transmission leads to a lack of understanding that we have been at risk. Hepatitis C is often symptomless for decades and we simply don’t realise we may have it. A lack of awareness of hepatitis C from GPs may lead to investigations of other causes and conditions when we present with symptoms like fatigue, depression and digestive problems.
2 years 3 weeks ago
The Wales Infected Blood Support Scheme (WIBSS) is looking for patient representatives to sit on its Appeals Panel. WIBSS was established in October 2017, to provide support to people who have been infected with hepatitis C and/or HIV following treatment with NHS blood, blood products or tissue. Taking over from the previous UK schemes (Eileen Trust, Macfarlane Trust, MFET Ltd, Skipton Fund and Caxton Foundation), WIBSS aims to provide both a streamlined financial payment service and personalised support for Welsh beneficiaries.
2 years 1 month ago
Baroness Randerson, co-chair of the All-Party Parliamentary Group (APPG) on Liver Health, today (9th July) tabled a question in the House of Lords on the government's strategy for eliminating hepatitis C.  Lord O’Shaughnessy, responding on behalf of the government, confirmed that the government currently has no plans to release an elimination strategy, but emphasised that they are working closely with the NHS towards an ambition of eliminating hepatitis C by 2025, five years ahead of the World Health Organization (WHO) target.
2 years 1 month ago
The Terms of Reference for the Infected Blood Inquiry were published on Monday 2nd July, with the UK Government and devolved institutions accepting the terms recommended by the Inquiry Chair, Sir Brian Langstaff, without amendment.
2 years 2 months ago
MPs today (12th June) held a debate in Westminster Hall on eliminating hepatitis C, led by Sir David Amess MP (pictured). The debate was secured following the publication of the All-Party Parliamentary Group on Liver Health's 'Eliminating Hepatitis C in England' report in March of this year, which The Hepatitis C Trust supported as the secretariat for the group.