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6 months 3 weeks ago
On October 17th we heard evidence from people all in very different circumstances:the first a man who didn’t even need the infected blood he was given, but was given it anyway as the result of a misdiagnosis; another who was infected as a child in connection with his haemophilia and who then suffered a lifetime of health problems as a result, compounded with being discriminated against because he was gay; and also the heart breaking testimony of a recently bereaved widow, who had spent the majority of her marriage having to care for her husband who received blood as a result of havi
6 months 4 weeks ago
The House of Commons Scottish Affairs Committee published its report into drugs policy in Scotland yesterday, finding a need for the UK Government to take “urgent and radical steps to halt Scotland’s drug crisis”.
6 months 4 weeks ago
Our colleague who attended on this day for the first time told us that he found there to be an air of deep sadness, anger and deep frustrations. He described how he was humbled by the feeling of quietness and calm as he listened to witnesses give their testimonies and kept repeatedly getting the feeling that “something wasn’t quite right” as each of the anonymous witnesses told their stories. He said it was clear that that they had all been betrayed and not told the truth about things.
7 months 4 days ago
  Liz   Liz talked about the fact that she lost two husbands because of infected blood.     The first was her teenage sweetheart, Jeremy, who she knew was a haemophiliac. She remembered the AIDS campaign and although she didn’t initially connect it with haemophilia, when they did ask the consultant about it in 1987, they were told not to worry as factor 9 products had to go through an additional heat treatment and there were no cases reported of his patients getting HIV.  
7 months 1 week ago
Flu vaccinations are available for free through the NHS for people living with chronic liver disease. Patients with chronic liver disease are at particular risk of severe illness if they catch flu. Those with liver disease are more likely to be admitted to hospital or on rare occasions be admitted to intensive care and potentially die. Evidence suggests that people with chronic liver disease are approximately 48 times more likely to die if they catch flu than individuals who have no other underlying health conditions.
7 months 1 week ago
This week the Health and Social Care Committee published a report following its inquiry into UK drugs policy, for which The Hepatitis C Trust submitted written evidence.
7 months 2 weeks ago
Sue and Tara Sue’s husband Mick was a severe haemophiliac who got both HIV and later discovered hepatitis C from Factor 8 products. They learnt later that records indicated he drank alcohol and this was given as a possible reason for his liver problems.  This was shock and added pain for the family to discover and in fact both Sue and her daughter Tara said he rarely drank alcohol… He wanted to stay totally private about his illness, both the haemophilia and the HIV, so the family kept his situation to themselves, as they knew questions would be asked and people would treat
7 months 2 weeks ago
Today we heard from three haemophiliacs who shared their experiences   Paul Paul was diagnosed with haemophilia A and received factor VIII. 
7 months 3 weeks ago
This was the second day of the last round of infected/affected witnesses' oral statements and different members of staff from the Trust will be attending as many of the hearings as we can, to offer our support and continue to learn from people’s experiences.  Today was a very powerful day with testimony from people infected and affected by hepatitis C and HIV as a result of blood products specifically for bleeding disorders.
8 months 4 days ago
Public Health England has responded to the Infected Blood Inquiry Chair Sir Brian Langstaff's recent letter expressing disappointment at the lack of focus on hepatitis C patients infected through blood transfusions in this year's Hepatitis C in England report.