Campaigning in England

Key statistics

  • An estimated 81,000 people in England have hepatitis C
  • In 2020, only 35% of Unlinked Anonymous Monitoring Survey participants in England, Wales and Northern Ireland were aware of their chronic HCV infection, which is a drop in the level of awareness from previous years
  • Between 2005 and 2014, deaths from hepatitis C-related liver disease more than doubled. In the last seven years, thanks to new treatments becoming available, we have already seen a 35% fall in deaths from hepatitis C-related liver disease.

Our work

The Hepatitis C Trust campaigns for improvements in awareness, testing and diagnosis for hepatitis C, and fights for access to treatment and high quality care for people affected by hepatitis C in England. Our policy and parliamentary team works hard to develop patient-centred policy solutions and to communicate these to decision-makers, including by making representations on behalf of people affected by hepatitis C to policymakers, NHS England and the UK Health Security Agency.

Your voice as a hepatitis C patient is crucial to making sure that policy decision-makers fully understand the issues around hepatitis C, and of the need for improvements in the quality of care for those living with the virus. The louder the patient voice, the more chance we have of successfully improving services.

Join us

Currently, The Hepatitis C Trust is campaigning for the Government to release a hepatitis C elimination strategy to ensure England achieves its commitment to eliminate the virus by 2030 at the latest. 

If you or someone you know has been affected by hepatitis C and you are keen to help raise awareness of the virus, get in touch with The Hepatitis C Trust and help us by letting your elected representatives and local decision-makers know about your experiences, and what you need them to do to improve services. You can get in touch with us by emailing aidan.rylatt@hepctrust.org.uk or elliot.bidgood@hepctrust.org.uk