Tolbooth, Stirling, FK8 1DE,
10 am to 4 pm, 19 March 2014
Hepatitis Scotland and The Hepatitis C Trust are organising a free conference for people across Scotland who have been diagnosed with Hepatitis C, whether they currently have the virus or have previously cleared it.
In May 2013, National Hepatitis Patient Forum representatives expressed their desire to have an event aimed at patients, rather than professionals, so as to get more focussed information about their condition, help create new networks and meet and share experiences with peers across Scotland.
Scotland’s Hepatitis C Patient Conference is aimed at informing, while also listening to those who attend, helping to shape the future direction of Scotland’s response to Hepatitis C. It will be exciting to see what can happen when we bring 100 patients together in one place to discuss what has been done and what more we could be doing.
The agenda includes a keynote address by the Minister for Public Health, an overview of the new treatment landscape with the risks and opportunities that brings and a presentation on patient activism by Charles Gore, President of the World Hepatitis Alliance and CEO of the Hepatitis C Trust. There will also be an opportunity to hear a patient’s experience of accessing treatment within Scotland.
There will be an interactive electronic voting and expert panel session to help gauge opinions to current issues and any queries highlighted by the audience. Two rounds of workshops will also occur on the day, including living with Hepatitis C, clarifying hospital appointments, new drug trials, Hepatitis C and families, developing peer support and the role of managed care networks.
The event is primarily aimed at people who have or have had Hepatitis C however there will be a limited number of staff places available.
There will be free transport arranged for all patient delegates.
If you have been previously diagnosed with Hepatitis C and live in Scotland and would like to register to attend or to find out more please visit http://www.hepatitisscotland.org.uk/index.php/latest-news-and-events/national-patient-conference/
The conference venue, voting equipment and patient travel costs are being generously supported by grants from Janssen UK, AbbVie, Gilead, Bristol-Myers Squibb and MSD.